rmc28: Rachel standing in front of the entrance to the London Eye pier (Default)

Seen on Facebook, tweaked a bit because I overthink things:

Let's start 2017 off in a positive way with a Pay It Forward meme.  The first 6 people to comment (and more if I can manage it) will receive a surprise from me at some point in 2017 - anything from a book, a ticket, something home-grown or made, a postcard, absolutely any surprise!  it will happen when the mood comes over me and I find something that I believe would suit you and make you happy.

(If you don't like surprises and would rather have something off a wishlist and/or some warning, let me know in your comment.  The goal is to make you happy.)

If you can, post this in your own journal and pay it forward.  Let's do more kind and loving things for each other in 2017, without any reason other than to make each other smile and show that we think of each other.



rmc28: Rachel standing in front of the entrance to the London Eye pier (Default)
I had birthday drinks in the pub this afternoon with many assorted lovely people.

I am so tired now, but it was utterly worth it.

*goes flop*
rmc28: Rachel standing in front of the entrance to the London Eye pier (Default)
Tomorrow is my birthday and I have set up a fundraising page for the charity Bloodwise to celebrate.
rmc28: Rachel standing in front of the entrance to the London Eye pier (Default)
And I'm still here[1], hurrah for medical research[2] and care.

A good day I think to post the updated How You Can Help list:.

Direct help
  1. Offer me lifts to/from Addenbrookes. I'm going to have a lot of outpatient appointments there between now and February or so, potentially any day of the week. Of the half-dozen so far, one was an hour, one was 3.5 hours, the rest were about 90 minutes. A number of lovely people have already offered and helped, but if you have a car and are willing to add yourself to their number, email me with a rough idea of whether there are typical times you could manage and how often you'd be willing to do so - and also whether you'd want to do a one-way trip or to wait around and do both ways. (I get reduced car parking as an outpatient, if needed.)
  2. Take one or both children out to play for an hour or two at weekends, e.g. at the local playground. Best arranged by emailing me.
  3. Invite Tony to things: pubs, cinema trips, parties, etc. I can't do these things right now, but he can, and could use a bit more social time outside the house. Best arranged by emailing him.
My preferred email address is rmcf @ cb4.eu
Tony's is dot @ dotat.at


Indirect help
  1. Financial donations to the following:
  2. Blood donation. I've already had multiple platelet and red blood cell transfusions and will need more over the coming months. (This comes with the caveat that not everyone can or should donate blood, and I strongly feel that no-one should feel guilty for not doing so.)
  3. Bone marrow register.  (Anthony Nolan Trust runs one, as does the NHS; they work together).  I should not need a bone marrow or stem cell transplant ... but if I do, the registers increase my chance of finding a match.  This comes with the same caveats as blood donation, only even more strongly because marrow or stem cell donation are a rather more serious commitment and procedure.

I also want to thank everyone who responded with pictures and gossip and visits etc to the list Tony posted for me soon after I was first admitted. I was greatly comforted, and very touched.  I feel tremendously grateful for the wealth of friendship and family support we have had revealed.




[1] The morning the consultant let me go home, he said cheerily "These days, most deaths from this cancer have happened by this stage if they're going to."

[2] This
paper summarising "state of the art" treatment for APL, i.e. what I am currently following, was published in 2006.  Twenty years ago my chances would have been far worse.



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rmc28: Rachel standing in front of the entrance to the London Eye pier (Default)
Rachel Coleman

March 2017

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